From Vision to Action: TEDDY Network Supports Stronger European Union Commitment to Paediatric Research On 4 June 2026, the event "Children in the Current EU Health Policy: Advancing Paediatric Research and Prevention Across Europe" was held...
TEDDY Network at the 1st National Summit on Rare Disease Policies
A strategic forum to shape the future of Rare Disease governance in Italy TEDDY Network is pleased to announce its participation in the 1st National Summit on Rare Disease Policies, taking place on 15 - 16 June 2026 at the Ministry of Health Auditorium in Rome (Viale...
Expression of interest to join the Patient Advisory Board (PAB)— Gabapentin in Paediatric Chronic Pain study (GAPP Study)
Are you a child or an adolescent, or do you care for someone, living with moderate to severe chronic pain? Would you be interested in joining a Patient Advisory Board (PAB) to contribute directly to research, engage with experts, and take part in decision-making...
Upcoming Webinar: Unlocking the Potential of Real-World Health Data for Paediatric Clinical Research
TEDDY Network Joins Discussion on Young Patient Perspectives in Paediatric Research TEDDY is pleased to share an upcoming joint educational webinar organised by the European Paediatric Transnational Research Infrastructure (EPTRI) and European Institute for Innovation...
ERDERA Young Advocates Training Concludes in Paris with Focus on Patient Rights and Research Partnership
Day 3 Highlights Young Patients as Partners in Research, Advocacy Empowerment, and Key Learnings, 25-04-2026 The third and final day of the 2nd ERDERA Training for Young Advocates for Rare Diseases took place on 25 April 2026...
ERDERA Young Advocates Training Continues in Paris with Focus on Clinical Research and Patient Engagement
Day 2 Highlights Advances in Clinical Trials, Rare Disease Specificities, and Patient Participation in Translational Research, 24-04-2026 The second day of the 2nd ERDERA Training for Young Advocates for Rare Diseases took place on 24 April...
ERDERA Young Advocates Training Opens in Paris: Day 1 Focuses on Advocacy and Drug Development
ERDERA Young Advocates Training Begins in Paris, 23-04-2026 The second edition of the ERDERA Training for Young Advocates for Rare Diseases officially opened on 23 April 2026 at Institut Imagine, Paris, bringing together young...
TEDDY Network Highlights Successful Webinar on Youth Patient Advocacy and Transition in Inherited Metabolic Diseases
Webinar Recording Available: Young Patient Advocacy - A Call to Action for Transition! TEDDY Network is pleased to share that the webinar “Young Patient Advocacy - A Call to Action for Transition”, held on 19 March 2026, has now concluded successfully and the full...
ERAMET Face-to-Face Meeting in Catania: Fostering Collaboration and Innovation
ERAMET Consortium Meets in Catania for Three Days of Scientific Exchange and Strategic Planning From 14 to 16 April 2026, the city of Catania, Italy, hosted the ERAMET Face-to-Face Meeting, which brought together representatives of the international...
TEDDY Announces Leadership Evolution
Introducing TEDDY’s Chair and Renewed Board Members The TEDDY - European Network of Excellence for Paediatric Clinical Research is proud to announce the appointment of Donato Bonifazi as its new Chair, alongside its Board of Directors. This marks a significant step in...