Promoting Meaningful Patient Engagement in Paediatric Rare Disease Research TEDDY Network participated in the World Orphan Drug Congress Europe 2026, held on 26 - 28 October at the RAI Congress Centre in Amsterdam, the Netherlands. The event brought together...
TEDDY General Assembly and Scientific Meeting 2026: The GAPP Study: Applying Innovative Methodologies in Paediatric Clinical Research – Roundtable with members from the Study Steering Committee, the Data Safety Monitoring Board and the Patient Advisory Board
The GAPP Study is a multicentre, non-profit Phase III clinical trial sponsored by TEDDY Network to evaluate the efficacy, safety, and pharmacokinetics of a paediatric liquid formulation of gabapentin for chronic moderate to severe neuropathic, nociplastic, or mixed...
TEDDY Network Contribute to New Publication on Meaningful Involvement of Young People in Rare Disease Research
TEDDY Network is proud to announce the publication of the article “Engaging children, adolescents and young adults living with rare diseases as research partners: practical considerations for meaningful involvement” in Frontiers in Pediatrics...
TEDDY General Assembly and Scientific Meeting 2026: Raising Awareness – The TEDDY KIDS’ Way | Biotech Week 2026
Bringing children and adolescents engagement into paediatric research As part of the TEDDY General Assembly and Scientific Meeting 2026, taking place on 18–20 September 2026 at University of Bari, Italy, Piazza Cesare Battisti, 1, 70121 Bari BA. TEDDY Network,...
TEDDY General Assembly and Scientific Meeting 2026: ERDERA Young Rare Disease Patient Advocates Training – Co-designing the 2027 Training and Future Youth Engagement | 19 September 2026 | 16:00–17:30 | Bari, Italy
Young people and ERDERA experts come together to shape the next training programme and future opportunities for youth participation in rare disease research As part of the TEDDY General Assembly and Scientific Meeting 2026, taking place on 18 - 20 September...
TEDDY General Assembly and Scientific Meeting 2026: OrphaDev4Kids Patient Expert Committee (PEC) parallel Session on Paediatric Medical Devices|19 September|11:30-13:00
Bringing PEC Perspectives into Paediatric Medical Device Innovation As part of the TEDDY General Assembly and Scientific Meeting 2026, taking place on 18 - 20 September 2026 at University of Bari, Italy, Piazza Cesare Battisti, 1, 70121 Bari BA. TEDDY will...
TEDDY General Assembly and Scientific Meeting 2026: INVENTS Patient Expert Group parallel Session|19 September|14:00-15:30|at BaLab Room
The INVENTS paeditrac Patient Expert Group (PEG): Empowering Young Patients to Influence Rare Disease Research As part of the TEDDY General Assembly and Scientific Meeting 2026, taking place on 18 - 20 September 2026 at University of Bari, Italy, Piazza Cesare...
TEDDY General Assembly and Scientific Meeting 2026: GAPP Study Round Table on Integrated Governance and Innovative Methodologies|18 September|18:00 – 19:30|BaLab Room
GAPP Study: Bringing Science, Safety and Young Patient Perspectives Together in Paediatric Research As part of the TEDDY General Assembly and Scientific Meeting 2026, taking place on 18–20 September 2026 at University of Bari, Italy, Piazza Cesare Battisti, 1,...
TEDDY General Assembly and Scientific Meeting 2026 – Panel Discussion – From Small Populations to Robust Evidence: European Methodologies for Paediatric and Rare Disease Drug Development | 19 September | 12:00 – 13:00 | University of Bari Aldo Moro, Piazza Cesare Battisti, 1, 70121 Bari BA and online
From Small Populations to Robust Evidence: European Methodologies for Paediatric and Rare Disease Drug Development As part of the TEDDY General Assembly and Scientific Meeting 2026, taking place from 18 to 20 September at the University of Bari Aldo Moro, Piazza...
TEDDY Network contributes to Accelerating Clinical Trials in the European Union (ACT-EU) Multi-stakeholder Platform Advisory Group (MSP AG) meeting on patient involvement in clinical trial design and conduct
Patient Engagement in Clinical Research: TEDDY Network Contributions to the ACT EU Multi-stakeholder Platform Advisory Group TEDDY Network is proud to contribute to the upcomingAccelerating Clinical Trials in the European Union (ACT-EU) Multi-stakeholder Platform...