INVENTS PEG TRAINING
Under the framework of the European INVENTS project the PEG (Patients Expert Group) was created to receive training and knowledge about progresses in biomedical research, health data, clinical research methodologies and their relevance to certain paediatric rare diseases. The first in-person meeting was held in Bari, followed by online webinars to further develop the youth group on the project’s aims and topics.
PEG kick off in-person meeting - Bari - 01-03/11/2024
The training process started following this training plan, with a 2 day in-person meeting in Bari (programme here), kickstarting a learning journey that would continue with a monthly series of webinars through all 2025.
Minutes are available here (Day1 – Day2).
Here’s a list of the matierials used during the sessions
PEG online monthly meeting - 24/01/2025
First meeting held online, the programme is available here
| Materials | |
| INVENTS – Pediatric Patients Expert Group | Meeting Report |
PEG online monthly meeting - 21/02/2025
Second online meeting, all materials are available below
| Materials | |
| INVENTS – Patients Group Experience | Meeting Report |
| AI Generated Notes | |
PEG online monthly meeting - 21/03/2025
Third online meeting, all materials are available below
| Materials | |
| INVENTS – Pediatric Patients Expert Group | Meeting Report |
PEG online monthly meeting - 18/04/2025
Fourth online meeting, all materials are available below
| Materials | |
| INVENTS – Digital Drug Detectives: Designing Tomorrow’s Medicines | Meeting Report |
PEG online monthly meeting - 30/05/2025
Fifth online meeting, all materials are available below
| Materials | |
| INVENTS – Your Voice Matters: How Your Opinions Shape the Medicines You Get | Meeting Report |
| Patient’s Preference questionnaire results | |
PEG online monthly meeting - 27/06/2025
Sixth online meeting, all materials are available below
| Materials | |
| INVENTS – Pediatric Patients Expert Group | Meeting Report |