The second edition of the ERDERA Young Patients Training brought together young advocates from across Europe for three days of learning, collaboration, and engagement in rare disease research.

Organised within the framework of the European Rare Diseases Research Alliance (ERDERA), the training was led by Institut Imagine in collaboration with TEDDY Network, EURORDIS-Rare Diseases Europe, and supported by connect4children-S.

Hosted at Institut Imagine in Paris, the programme provided participants with the opportunity to explore key topics in paediatric and rare disease research, including clinical trials, patient engagement, ethics, patients’ rights, translational research, and drug development. Through interactive workshops, discussions, and exchanges with experts, young participants strengthened their knowledge and skills while sharing their perspectives as future patient advocates and research partners.