TEDDY’s 2023 Annual General Assembly: Key Achievements

TEDDY ended 2023 on a high note! On the 21st of December the TEDDY Network held a successful Annual General Assembly meeting in hybrid mode. TEDDY Network members and participants reflected on the strides the TEDDY Network has taken thus far in improving Paediatric Research Excellence in Europe. Existing members re-dedicated their efforts in the fields

January 13th, 2024|

TEDDY representative appointment to the ENCePP Steering Group

  We are excited to announce that Annalisa Landi, a TEDDY representative and researcher at Fondazione Gianni Benzi Onlus has been appointed as Steering Group member of the European Network of Centres for Pharmacoepidemiology and Pharmacovigilance (ENCePP) for the term 2024-2026.  The ENCePP is a network coordinated by the European Medicines Agency, aimed to strengthen

December 7th, 2023|

TEDDY Kids at the 2023 iCAN Summit

TEDDY Network’s young persons advisory groups (YPAG) from Albania (KIDS Albania) and Italy (KIDS Bari) have participated at the 2023 International Children’s Advisory Network (iCAN) Summit that was held in La Jolla, San Diego, California from July 10 to July 14, 2023.   During these intense and productive 5 days of meeting, participants had the opportunity

July 18th, 2023|

Third Paediatric Expert Patients Training Workshop

TEDDY is organising the “Third Paediatric Expert Patients Training Workshop” in collaboration with EURORDIS and the Sant Joan de Déu Research Foundation in the framework of the European Joint Programme on Rare Diseases (EJPRD).   This year, the paediatric training workshop will take place in Barcelona, Spain, from Wednesday 21st to Friday 23rd June 2023.  This

April 26th, 2023|

TEDDY Kids meeting dedicated to Rare Diseases 

  This 28 February is Rare Disease Day (RDD), an opportunity to celebrate people living with rare diseases and to raise awareness of these disorders.   TEDDY Network, through its Young Persons Advisory Groups (YPAGs) (KIDS Albania, KIDS Bari, and KIDS Hellas) and the TEDDY Kids international group, is happy to participate in several activities planned to raise

February 20th, 2023|

Actions to support the development of medicines for children

The closing report of the European Medicines Agency (EMA) and European Commission (DG Health and Food Safety) action plan on paediatrics has been recently published.   During the past four years, several initiatives were taken to increase the efficiency of the paediatric regulatory processes and promote the development of paediatric medicines.  The paediatric action plan has

February 20th, 2023|

COVID’s Lasting Consequences for Kids

Dr. Jeremy Faust, editor-in-chief of MedPage Today has interviewed Dr. Zachary Rubin, allergist and immunologist of Oak Brook Allergists in Illinois, to discuss the lasting effects of COVID-19 on pediatric health.  According to Dr. Rubin there is not a single clinical phenotype for patients with long COVID. Patients can present:   brain fog and other neurological

January 26th, 2023|

Workshop on quality criteria/standards of paediatric clinical trial sites

The workshop, co-organised by the European network of paediatric research at the EMA (Enpr-EMA) and conect4children (c4c), was held virtually on October 3, 2022. Participants included members of Enpr-EMA and of c4c, members of the European Medicines Agency’s (EMA) Paediatric Committee (PDCO) as well as members of EMA’s Paediatric Medicines Office, along with invitees representing

January 13th, 2023|

Becoming a Leader: Donato Bonifazi on ‘Managing Trials’

Dr Donato Bonifazi, in his role as iCAN Advisory Board Member, has participated in the International Children’s Advisory Network (iCAN), “Becoming a Leader” short videos series to talk about the challenges of conducting clinical trials for and with the paediatric population.   According to Dr Bonifazi “we’ll not only need to adapt adults' medicines to

January 13th, 2023|