We are proud to announce that the Council of Europe has released the Guide to children’s participation in decisions about their health. The Guide was prepared by a group of government and independent experts, who included Dr Annagrazia Altavilla, past chair of TEDDY Network. A draft of the guide was submitted for consultation to key
This year marks iCAN’s 10th anniversary, making the 2024 summit particularly significant. The event will bring together iCAN chapters worldwide for five days, focusing on paediatric research, healthcare innovation, collaboration, and advocacy. This year iCAN will welcome new chapters from Greece, Kosovo, and Poland, the newborn YPAGs of the TEDDY Network. TEDDY Network values collaboration and
During the last GA, several 2023, several Working Groups (WGs) and subgroups have been created to plan, organise, and coordinate the activities that fall within TEDDY Objectives. Each TEDDY participant has selected one or more groups to which they are willing to participate by filling in an expression of interest. It’s still possible to participate
TEDDY ended 2023 on a high note! On the 21st of December the TEDDY Network held a successful Annual General Assembly meeting in hybrid mode. TEDDY Network members and participants reflected on the strides the TEDDY Network has taken thus far in improving Paediatric Research Excellence in Europe. Existing members re-dedicated their efforts in the fields
We are excited to announce that Annalisa Landi, a TEDDY representative and researcher at Fondazione Gianni Benzi Onlus has been appointed as Steering Group member of the European Network of Centres for Pharmacoepidemiology and Pharmacovigilance (ENCePP) for the term 2024-2026. The ENCePP is a network coordinated by the European Medicines Agency, aimed to strengthen
TEDDY Network’s young persons advisory groups (YPAG) from Albania (KIDS Albania) and Italy (KIDS Bari) have participated at the 2023 International Children’s Advisory Network (iCAN) Summit that was held in La Jolla, San Diego, California from July 10 to July 14, 2023. During these intense and productive 5 days of meeting, participants had the opportunity
TEDDY is organising the “Third Paediatric Expert Patients Training Workshop” in collaboration with EURORDIS and the Sant Joan de Déu Research Foundation in the framework of the European Joint Programme on Rare Diseases (EJPRD). This year, the paediatric training workshop will take place in Barcelona, Spain, from Wednesday 21st to Friday 23rd June 2023. This
This International Course organized by the Medical University of Gdańsk, in collaboration with EURORDIS and EJP RD, and the support of ACCURARE Turkey and ISS Italy, will be held in Gdańsk, Poland on 26 to 27 October 2023. The course aims to teach participants the following competences through plenary presentations and interactive sessions: Presentation,
This 28 February is Rare Disease Day (RDD), an opportunity to celebrate people living with rare diseases and to raise awareness of these disorders. TEDDY Network, through its Young Persons Advisory Groups (YPAGs) (KIDS Albania, KIDS Bari, and KIDS Hellas) and the TEDDY Kids international group, is happy to participate in several activities planned to raise
The closing report of the European Medicines Agency (EMA) and European Commission (DG Health and Food Safety) action plan on paediatrics has been recently published. During the past four years, several initiatives were taken to increase the efficiency of the paediatric regulatory processes and promote the development of paediatric medicines. The paediatric action plan has