Off-label use in Paediatrics

This WG is aimed to prepare a document on paediatric “good off-label use”. This topic is of particular interest for TEDDY Network dealing with paediatric clinical research, because the off-label medicines use in paediatrics is widespread in Europe and worldwide and often there is no alternative than off-label treatments. Among the main activities performed by this WG members there are:

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The preparation of a comprehensive overview of the existing documents and recommendations on the issue of paediatric off-label medicines use;

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The development of a first draft of the paediatric guide, using a consensus approach (Delphi or similar);

WG reference person:
Lucia Ruggieri

lr@benzifoundation.org

Members:
Saskia de Wildt

 Saskia.deWildt@radboudumc.nl

Titske van der Zanden

tsainzcosta@gmail.com

Rossella Conte

 rc@benzifoundation.org

Adriana Ceci

 adriceci.uni@gmail.com

Valeria Pignataro

vpignataro@cvbf.net

Florian Lagler

 florian.lagler@pmu.ac.at

Helen Sammons

 helen.sammons@nottingham.ac.uk

Evelyne Jacqz-Aigrain

 marinakl@cing.ac.cy

Marios Phylactides

mphylact@cing.ac.cy

Madlen Gazarian

m.gazarian@unsw.edu.au

Kejla Musaraj

kmusaraj@cvbf.net