This 28 February is Rare Disease Day (RDD), an opportunity to celebrate people living with rare diseases and to raise awareness of these disorders.
TEDDY Network, through its Young Persons Advisory Groups (YPAGs) (KIDS Albania, KIDS Bari, and KIDS Hellas) and the TEDDY Kids international group, is happy to participate in several activities planned to raise awareness of rare diseases.
We are organizing a meeting dedicated to rare diseases, which will be held in hybrid mode on Friday 24 February.
YPAG’s members and TEDDY Kids participants will talk about rare diseases with Prof. Dr. Manika Kreka (pediatrician at University Hospital Center” Mother Teresa” Tirana, Center of Congenital Blood Diseases) who is the Medical Director of the Albanian CVBF’s branch. The meeting will end with the awareness campaign for the RDD 2023 created by kids.
Follow us to discover the awareness campaign!