ERDERA opens call for young rare disease advocates to join training in Paris The TEDDY- European Network of Excellence for Paediatric Clinical Research is proud to announce the second edition of the young advocates’ training organised under the framework of...
Eirini Daskalopoulou joins Global Network for Rare Disease (GNRD)
Eirini Daskalopoulou’s Role in Shaping Global Rare Disease Care Pathways Rare Diseases International, in collaboration with Rare Care Centre and Wilhelm Foundation, is launching a Working Group to develop a Model Care Pathway for Rare Diseases adaptable to different...
“Raising Youth Voices”: Empowering the Next Generation of Rare Disease Advocates
“Raising Youth Voices” Launches Global Platform for Young Rare Disease Advocates TEDDY Network is pleased to highlight the launch of “Raising Youth Voices,” a new global initiative coordinated by Rare Disease Day that seeks to ensure young people living with rare...