Are you a child or an adolescent, or do you care for someone, living with moderate to severe chronic pain? Would you be interested in joining a Patient Advisory Board (PAB) to contribute directly to research, engage with experts, and take part in decision-making...
Recent Posts
- TEDDY Network Contribute to New Publication on Meaningful Involvement of Young People in Rare Disease Research
- TEDDY General Assembly and Scientific Meeting 2026: Raising Awareness – The TEDDY KIDS’ Way | Biotech Week 2026
- TEDDY General Assembly and Scientific Meeting 2026: ERDERA Young Rare Disease Patient Advocates Training – Co-designing the 2027 Training and Future Youth Engagement | 19 September 2026 | 16:00–17:30 | Bari, Italy
- TEDDY General Assembly and Scientific Meeting 2026: OrphaDev4Kids Patient Expert Committee (PEC) parallel Session on Paediatric Medical Devices|19 September|11:30-13:00
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