A strategic forum to shape the future of Rare Disease governance in Italy TEDDY Network is pleased to announce its participation in the 1st National Summit on Rare Disease Policies, taking place on 15 - 16 June 2026 at the Ministry of Health Auditorium in Rome (Viale...
Recent Posts
- TEDDY Network Contribute to New Publication on Meaningful Involvement of Young People in Rare Disease Research
- TEDDY General Assembly and Scientific Meeting 2026: Raising Awareness – The TEDDY KIDS’ Way | Biotech Week 2026
- TEDDY General Assembly and Scientific Meeting 2026: ERDERA Young Rare Disease Patient Advocates Training – Co-designing the 2027 Training and Future Youth Engagement | 19 September 2026 | 16:00–17:30 | Bari, Italy
- TEDDY General Assembly and Scientific Meeting 2026: OrphaDev4Kids Patient Expert Committee (PEC) parallel Session on Paediatric Medical Devices|19 September|11:30-13:00
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2026 guideline AICRO c4c children clinical research clinical trials CONSORT-C Corbel Curewiki Eirini Daskalopoulou EMA EPTRI ERDERA ESPR european project EURORDIS Foresight Training Course GAPP GAPP Study Gianni Benzi Foundation guidelines Institute Imagine International meeting International Rare Diseases Research Consortium INVENTS IRDiRC Italian Ministry of Health NationalSummitonRareDiseasePolicies network meetings PAB Paediatric Experts Committee paediatrics Patient Expert Group Patient Voice Database PEDCRIN PRFC 2026 publications Rare Diseases SPIRIT-C SPIRIT Guidlines TEDDY TEDDY KIDS Network TEDDY Network Training YPAG