A strategic forum to shape the future of Rare Disease governance in Italy TEDDY Network is pleased to announce its participation in the 1st National Summit on Rare Disease Policies, taking place on 15 - 16 June 2026 at the Ministry of Health Auditorium in Rome (Viale...
Expression of interest to join the Patient Advisory Board (PAB)— Gabapentin in Paediatric Chronic Pain study (GAPP Study)
Are you a child or an adolescent, or do you care for someone, living with moderate to severe chronic pain? Would you be interested in joining a Patient Advisory Board (PAB) to contribute directly to research, engage with experts, and take part in decision-making...
TEDDY takes the Lead in coordinating EPTRI’s Central Management Office
TEDDY strengthens its role in European Paediatric Research by coordinating EPTRI’s Central Management Office TEDDY - European Network of Excellence for Paediatric Clinical Research has taken on the coordination of the Central Management Office (CMO) of the European...
Upcoming Webinar: Advancing Paediatric Clinical Trials with SPIRIT-Children & CONSORT-Children
TEDDY Network joins to Discuss Emerging Paediatric Clinical Trial Standards and Global Best Practices The TEDDY Network is delighted to highlight its involvement in the upcoming EPTRI webinar: “CONSORT- and SPIRIT-Children: Reflections on...
TEDDY Partners with Curewiki to Empower Patients Through the Patient Voice Database
A Secure, GDPR-compliant platform to enable meaningful patient participation in clinical research TEDDY Network has integrated the Patient Voice Database into the TEDDY website. This secure, patient-centred, research-oriented platform developed...
Strengthening Paediatric Research: TEDDY Contributes to New Trial Guidelines
Global Guidelines for Paediatric Trials Developed with TEDDY Expertise TEDDY is proud to announce the involvement in the preparation of major guidelines aimed at improving the design, and reporting of paediatric clinical trials. The...
Advancing the Future of Paediatric Research: TEDDY Network at the Global Forum in Geneva
TEDDY Network’s contributions to child engagement and evidence-based paediatric medicine at a global scientific event The TEDDY Network is proud to announce that two abstracts have been accepted for poster presentation at the international congress “Paediatric...
Eirini Daskalopoulou joins Global Network for Rare Disease (GNRD)
Eirini Daskalopoulou’s Role in Shaping Global Rare Disease Care Pathways Rare Diseases International, in collaboration with Rare Care Centre and Wilhelm Foundation, is launching a Working Group to develop a Model Care Pathway for Rare Diseases adaptable to different...
“Raising Youth Voices”: Empowering the Next Generation of Rare Disease Advocates
“Raising Youth Voices” Launches Global Platform for Young Rare Disease Advocates TEDDY Network is pleased to highlight the launch of “Raising Youth Voices,” a new global initiative coordinated by Rare Disease Day that seeks to ensure young people living with rare...