TEDDY Network is proud to announce the publication of the article “Engaging children, adolescents and young adults living with rare diseases as research partners: practical considerations for meaningful involvement” in Frontiers in Pediatrics...
Recent Posts
- TEDDY Network Contribute to New Publication on Meaningful Involvement of Young People in Rare Disease Research
- TEDDY General Assembly and Scientific Meeting 2026: Raising Awareness – The TEDDY KIDS’ Way | Biotech Week 2026
- TEDDY General Assembly and Scientific Meeting 2026: ERDERA Young Rare Disease Patient Advocates Training – Co-designing the 2027 Training and Future Youth Engagement | 19 September 2026 | 16:00–17:30 | Bari, Italy
- TEDDY General Assembly and Scientific Meeting 2026: OrphaDev4Kids Patient Expert Committee (PEC) parallel Session on Paediatric Medical Devices|19 September|11:30-13:00
Tags
2026 guideline AICRO c4c children clinical research clinical trials CONSORT-C Corbel Curewiki Eirini Daskalopoulou EMA EPTRI ERDERA ESPR european project EURORDIS Foresight Training Course GAPP GAPP Study Gianni Benzi Foundation guidelines Institute Imagine International meeting International Rare Diseases Research Consortium INVENTS IRDiRC Italian Ministry of Health NationalSummitonRareDiseasePolicies network meetings PAB Paediatric Experts Committee paediatrics Patient Expert Group Patient Voice Database PEDCRIN PRFC 2026 publications Rare Diseases SPIRIT-C SPIRIT Guidlines TEDDY TEDDY KIDS Network TEDDY Network Training YPAG