Day 1: Global Young Advisors Begin a Week of Learning and Collaboration | 13 July 2026 The 12th International Children's Advisory Network (iCAN) Summit 2026 opened its week-long programme at Barretstown, County Kildare, Ireland, bringing together children and young...
Patient Advisory Board Begins Active Contribution to the GAPP Study
The GAPP Patient Advisory Board Held Its Inaugural Meeting to Review the Study Protocol Following the recent announcement of the establishment of the Patient Advisory Board (PAB) for the GAPP Study (Gabapentin in Paediatric Pain), TEDDY is pleased to share that the...
ERDERA launches 2026 Clinical Trial Call for multinational rare disease studies
ERDERA launches Clinical Trial Call 2026 to advance early‑phase clinical trials for rare diseases The ERDERA Clinical Trial Call 2026 is open to fund multinational, sponsor-led, GCP-compliant Phase I, Phase I/II and Phase II interventional Clinical trials in rare...
Expression of interest to join the paediatric Patient Expert Group (PEG) – INVENTS Project
General Information Are you a young person aged 12 to 18 living with a rare disease or family of someone who is? Are you a young person with an interest in healthcare, biomedical research, and the rights of young patients? Are you willing to help make paediatric rare...
TEDDY Network Proudly Announces New Scientific Publication within the OrphaDev4Kids Project
New Article Highlights Clinical Perspectives on Wearable Biosensor for Children with Cyanotic Congenital Heart Disease TEDDY Network is pleased to announce the publication of the peer-reviewed article titled “Clinical perspectives on wearable devices...
TEDDY Establishes the Patient Advisory Board for the GAPP Study
The Patient Advisory Board Is Established: Integrating Patient Perspectives into the GAPP Study TEDDY is pleased to announce the establishment of the Patient Advisory Board (PAB) within the GAPP Study (Gabapentin for the Treatment of Chronic Pain in Children and...
TEDDY Network at iCAN Summit 2026, Ireland
International collaboration and youth engagement take centre stage at the upcoming iCAN’s 12th Summit The TEDDY Network is proud to announce the participation of iCAN Summit 2026, taking place at Barretstown, County Kildare, Ireland, from 12 - 17 July 2026. Organised...
TEDDY Network at the 1st National Summit on Rare Disease Policies in Rome
The TEDDY Model for Engagement and Empowerment for young people in Care Transition The TEDDY Network announces its participation in the 1st National Summit on Rare Disease Policies held in Rome on 15 - 16 June 2026. The institutional event...
TEDDY Network at the European Health Management Conference 2026, 10-12 June, in Barcelona, Spain
Donato Bonifazi to Present Research on Synthetic Control Arms TEDDY Network is pleased to participate in the European Health Management Conference (EHMA) 2026, taking place from 10-12 June 2026 in Barcelona, Spain. Under the...
TEDDY Network at the 1st National Summit on Rare Disease Policies
A strategic forum to shape the future of Rare Disease governance in Italy TEDDY Network is pleased to announce its participation in the 1st National Summit on Rare Disease Policies, taking place on 15 - 16 June 2026 at the Ministry of Health Auditorium in Rome (Viale...