The past 5th of June, the OrphaDev4Kids Project held its second General Assembly. This event, hosted by one of the Project’s partners, the Medical University of Graz in Austria, counted with the presence of Project members and clinical experts that witnessed firsthand...

On May 2nd and 3rd, the ERDERA Young Patients Training was held in Athens at the Hotel Stratos Vassilikos, Olympia Room, organized by the TEDDY Network in collaboration with Rare Diseases Greece and with the support of KRIKOS ZOIS.   In the framework of the...

ERDERA is expanding its expert network and is currently seeking specialists in Rare Diseases from underrepresented countries (UCs) to join its exclusive pool of experts. This initiative aims to enhance geographical representation and foster inclusive international...

Innovative methodologies—such as in vitro and preclinical models, biomarkers, and pharmacometric approaches—play a crucial role in advancing medicine development, especially in areas where traditional clinical trials are limited by small populations, ethical...

On 15 March 2025, the kick-off meeting of the Patient Expert Committee (PEC) of the European project OrphaDev4kids was held in the Poeti Hall of the Hercolani Palace at the University of Bologna. The event was organized in a hybrid format, allowing active...

From April 2 to 4, 2025, the International Conference organized by the Council of Europe (CoE) took place in Strasbourg, focusing on the European Strategy for Children's Rights. The event brought together the TEDDY KIDS, experts, activists and young delegates from...

GENERAL INFORMATION Are you an adolescent between 12 and 18 years old with an interest in healthcare, biomedical research, children's rights, and innovative methodologies in clinical research? Are you a patient living with Rare Diseases?  Are you willing to acquire...

We are excited to announce that TEDDY has become a member of the European Paediatric Translational Research Infrastructure (EPTRI). EPTRI is a distributed Research Infrastructure (RI) aiming to boost the paediatric research ecosystem and to offer to public and private...

Funded by Horizon Europe and launched in January 2024, the ERAMET (“Ecosystem for Rapid Adoption of Modelling and Simulation Methods to Address Regulatory Needs in the Development of Orphan and Paediatric Medicines”) project aims to revolutionize the decision-making...