TEDDY is organising the “Second Paediatric Expert Patients Training Workshop” in collaboration with EURORDIS and the Sant Joan de Déu Research Foundation in the framework of the European Joint Programme on Rare Diseases (EJPRD).
The paediatric training workshop will be held during the iCAN (International Children’s Advisory Network) summit that will take place on July 11th -15th at the University of Lyon (France).
This course is directed to 15 paediatric patients in Europe, so if you are an adolescent aged from 12 to 18 interested in the themes of health, biomedical research, healthcare, and children rights or a patient with a chronic rare disease interested in getting the skills to contribute to develop and shape research making it more suitable for children, this paediatric expert patients training workshop is for you!
This course aims at making young patients like you ready to actively participate in scientific research and play an important role in improving research and healthcare services for all patients by contributing with your own specific experience.
The workshops will be performed in English and delivered by paediatricians, investigators, psychologists, representatives of patients’ associations, YPAGs facilitators, legal, ethical and regulatory experts. The participants will participate in case studies, practical activities & discussions in order to make the comprehension of the topics presented easier and to assess if the expected objectives are reached.
Information about the registration and the preliminary programme can be accessed here.