KIDS Bari, the first Italian Young Persons Advisory Group (YPAG), has been invited to participate in the SMART Open workshop – Paediatric Foresight Training Course, that will take place in Warsaw on 29 and 30 November 2018. The workshop will be realised in the framework of SMART – Small Medicines Advanced Research Training, a project aimed at raising the Instytut Pomnik Centrum Zdrowia Dziecka (IPCZD – Poland) staff’s research profile and increase capacity in providing innovative paediatric research methods. Within the project, a specific training programme has been developed, including the organisation of staff exchanges, face to face courses and summer schools.
The meeting, entitled “Current status and future changes in the European paediatric biomedical research” intends to provide an overview of the novelties in the regulatory, academic and ethical framework as well as of the existing paediatric initiatives around Europe to promote paediatric biomedical research and drugs development. Among these initiatives, KIDS Bari is certainly one the most innovative actions in the European and global clinical framework. In occasion of the SMART workshop, a representative of the Italian YPAG will present the activities of the group, explaining the importance of patient’s advocacy and involvement of young people in facilitating the work of the investigators and speed up the progress of paediatric clinical research.
KIDS Bari, kicked off in June 2017, is promoted by Consorzio per Valutazioni Biologiche e Farmacologiche (CVBF) and the TEDDY Network in collaboration with the Paediatric Hospital “Giovanni XXIII”. In the year 2017/2018 the members of KIDS Bari went trough a deep training programme focused on learning about the research process as well as they performed some important advisory activities in the framework of different research project. More information about KIDS Bari activities can be found at this link.
Further information on the SMART workshop is available here.