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Training on strategies to foster solutions of undiagnosed rare disease cases
As part of the training activities proposed by EJP RD, an online training course on “Training on strategies to foster solutions of undiagnosed rare disease cases” is being organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP RD partners....
Task Force on Disregarded Rare Diseases (Pluto Project)
The Therapies Scientific Committee (TSC) of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force to characterize specific commonalities amongst a large group of “disregarded” rare diseases, with the potential secondary aims to...
TASK FORCE ON DRUG REPURPOSING GUIDEBOOK
IRDiRC's Therapies Scientific Committee (TSC) is establishing a Task Force on Drug Repurposing Guidebook aimed at helping developers identify specific tools and practices of relevance for repurposing projects, by focusing on repurposing approaches, following the same...
New IRDiRC publication
The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the publication of a commentary on 10 years of progress and challenges of IRDiRC in the prestigious journal Nature Reviews Drug Discovery. The article summarizes IRDiRC’s vision and...
SAVE THE DATE: WEBINAR “ADDRESSING THE CHALLENGES OF CONCOMITANT DEPLOYMENT OF COVID-19 AND INFLUENZA VACCINATION”, 17 December 2021, 11.00 CET
The webinar ‘ADDRESSING THE CHALLENGES OF CONCOMITANT DEPLOYMENT OF COVID-19 AND INFLUENZA VACCINATION’ is organised by Active Citizenship Network(ACN) and will be held on 17th December 2021 at 11.00 CET. TEDDY Network will be represented by Prof. Carlo Giaquinto who...
SAVE THE DATE: 2nd EPTRI WEBINAR OF THE SERIES “A JOURNEY IN PAEDIATRIC MEDICAL DEVICES”
EPTRI is organizing the second webinar on medical devices: ‘Health technology designed for children with children’ that will be held on 16 December 2021 at 15.00 CET. Register here. Versatility is key to the development of health technology for children and young...
SAVE THE DATE: XIV Foresight Training Course – The health emergency: regulatory crash and future perspectives, Friday 10 December 2021 at 11:20AM (CET)
Fondazione Gianni Benzi organises the XIV Foresight Training Course “The health emergency: regulatory crash and future perspectives” that will be held virtually on December 10th, 2021 at 11.20 (CET). Register for free to the event here! Experts in the field will...
EMA survey on Orphan Maintenance Assessment Report (OMAR) – Extended deadline
The European Medicines Agency is carrying out a survey to gather information on your current experience with the Orphan Maintenance Assessment Reports (OMARs) / Orphan Designation Withdrawal Assessment Reports resulting from the review by the Committee for Orphan...
Improving clinical paediatric research and learning from COVID-19: recommendations by the Conect4Children expert advice group
The article summarises aspects of clinical research in paediatrics stimulated and reinforced by COVID-19 that the conect4children group recommends regulators, sponsors, and investigators retain for the future, to enhance the efficiency, reduce the cost and burden of...