Task Force on Disregarded Rare Diseases (Pluto Project)

Task Force on Disregarded Rare Diseases (Pluto Project)

The Therapies Scientific Committee (TSC) of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force to characterize specific commonalities amongst a large group of “disregarded” rare diseases, with the potential secondary aims to identify removable roadblocks that may foster future research and development.

The TSC is specifically looking for members to populate the Task Force with the below expertise in one or more of the following areas:

  • Drug developers (public and private, for/ no profit)
  • Scientists / Clinicians
  • Public or private rare disease research funders
  • Regulators, Rare Disease Policy
  • Patient Advocates

Apply before February 11th!

February 1st, 2022|