A new Paediatric Research Infrastructure (RI) is about to enter into the European scenario of the Paediatric Research. The European Paediatric Translational Research Infrastructure (EPTRI), in fact, was funded within the H2020 – INFRADEV –...
PedCrin, C4C, INCiPiT and RECLIP: the role of TEDDY in the current European scenario of the paediatric Networks
The General Assembly of TEDDY, held in Rome on 14th January 2018, has provided the occasion to meet the representatives of the current European Paediatric Networks, in which TEDDY is involved, thus giving the possibility to discuss the recent strategies of cooperation...
The legal status of TEDDY: a new opportunity to consolidate the Network in the European paediatric research community
In 2017, TEDDY has assumed a legal status to be fully represented and consolidated in the paediatric research community framework, to actively take part in new EU projects and to have a well-identified role. TEDDY Network, funded in 2005 as a Network of Excellence...
TEDDY General Assembly in Rome 2018
The General Assembly of TEDDY – European Network of Excellence for Paediatric Clinical Research took place on January 14th, 2018 in Rome (Italy). The meeting, entitled “A new phase for paediatric clinical research: a play role for TEDDY?”, provided an update on the...
TEDDY General Assembly in Rome 2018
The General Assembly of TEDDY – European Network of Excellence for Paediatric Clinical Research took place on January 14th, 2018 in Rome (Italy). The meeting, entitled “A new phase for paediatric clinical research: a play role for TEDDY?”, provided an update on the...
EMA individual experts’ stakeholder database: patients and consumers
The European Medicines Agency (EMA) collaborates with a large number of patients, consumers and their organisations on aspects such as information on medicines, consultation on product-specific issues and participation in workshops and meetings. These patient and...
ERN-LUNG builds a new infrastructure for patient data management
In October 2017, the European Reference Network for rare diseases of the respiratory system (ERN-LUNG) won the competition for a grant from the European Union to establish registries of patient data and make them fully interoperable with the already existing...
ICH-GOOD CLINICAL PRACTICE (GCP) TRAINING COURSE
The e-learning “ICH-Good Clinical Practice (GCP) Training Course”, promoted by Consorzio per Valutazioni Biologiche e Farmacologiche in the framework of the GAPP project, is available free of charge at the following link: www.gcptraining.cvbf.net. The course meets the...
EMA: Brexit update and adoption of work programme for 2018
The last press release published by EMA (European Medicines Agency) on December 15th, 2017, reports some important highlights from the Management Board meeting about Brexit preparation and the adoption of the work programme for 2018. EMA now has just over 15 months to...
Launch of the Parliamentary Advocates for Rare Diseases
On October 17th, 2017, the Parliamentary Advocates for Rare Diseases, a network of European and national members of Parliament advocating to improve the lives of people living with a rare disease, was launched by EURORDIS, the European Organization for Rare Diseases,...