28th February 2019 will be the twelfth international Rare Disease Day. This annual initiative promoted by EURORDIS, foresees the participation of more than hundreds of organizations from countries and regions all over the world, involved in awareness-raising...
TEDDY announces that the General Assembly 2019 will be held on March 29 at the Ministry of Health, Madrid, Spain. The event will provide the occasion to discuss and evaluate the actions performed in the last year and share ideas and plans for the future activities of...
The new EU General Data Protection Regulation ("GDPR") came into effect May 25, 2018 and describes the privacy policy related to the services, the uses and the purposes of data processing as well as the measures to be applied to guarantee its confidentiality. The...
On 6 and 7 May 2019, the RESTORE Kick-Off meeting will take place in Berlin, Germany. The meeting will provide the occasion to put together the RESTORE community and share the future plans and common perspectives. The large-scale Research Initiative “RESTORE” is a...
On 13 September 2018, the Committee for Advanced Therapies (CAT) of the European Medicines Agency (EMA) organised a meeting with interested parties in order to discuss and get input on the ATMP (Advanced Therapy Medicinal Product) guidelines under development as well...
The members of three European YPAGs (Young Persons Advisory Group), KIDS Albania, KIDS Barcelona and KIDS Bari have been asked to provide their contribution in the framework of ID-EPTRI (European Paediatric Translational Research Infrastructure), a project funded...
On 29 and 30 November 2018 the final SMART Open workshop – Paediatric Foresight Training Course, took place in Warsaw. The event was organised in the framework of SMART – Small Medicines Advanced Research Training, an EU funded project coordinated by the Instytut...
In January 2019, the European Joint Programme on Rare Disease (EJPRD) started its activities aimed to create a comprehensive, sustainable system allowing virtuous circle between research, care and medical innovation. TEDDY Network is among the beneficiaries of this...
Partnerships in Clinical Trials (PCT) Conference will be held in Barcelona 27-29 November and will provide the occasion to discuss the current and future challenges and issues in the clinical research and in particular in early clinical development. The event will...
The Italian Society of Pharmacology (SIF), in collaboration with the University of Trieste and Istituto di Ricovero e Cura a carattere scientifico “Burlo Garofalo” of Trieste, organised the Monothematic Conference “Clinical Trials and off-label in paediatrics:...