ACT-EU (Accelerating Clinical Trials in the EU) is a Multi-stakeholders Platform Advisory Group, in which our network is contributing to with the definition of the ten Priority Actions (PAs) to drive the transformation of Clinical Research in Europe. The TEDDY...
The European Rare Diseases Research Alliance (ERDERA)
In ERDERA, TEDDY is tasked with the organization of a yearly training program, implemented during a 2–3 day training course, involving 20 young patients (12-18) with rare diseases. This training will be hosted each year for the whole duration of ERDERA, starting from...
TEDDY’s children engagement with the INVENTS PEG
In the INVENTS project TEDDY is tasked with delivering the necessary knowledge and know-how to a young group of young patients affected by Juvenile Idiopathic Arthritis (JIA) or Multiple Sclerosis (MS) through the setup and development of a Patients Expert Group...
Follow up to the 10th iCAN Summit
The month of July 2024 was a memorable one for the TEDDY Network and for the Kids groups that it supports. 90 young people and patients from 15 countries across 4 continents attended the iCAN 2024 Research and Advocacy Summit in Bari, Italy. The summit was organized...
KIDS Kosova – Newborn Advisory Group in the TEDDY Network
Exciting news from Kosovo! Last week, we spent two incredible days in Pristina, diving into the future of clinical trials in Europe's newest country. Led by Donato Bonifazi, member of the Board of Directors of TEDDY and CEO of CVBF, we had the privilege of visiting...
Council of Europe “Guide to children’s participation in decisions about their health”
We are proud to announce that the Council of Europe has released the Guide to children’s participation in decisions about their health. The Guide was prepared by a group of government and independent experts, who included Dr Annagrazia Altavilla, past chair of TEDDY...
iCAN 2024 Research and Advocacy Summit
This year marks iCAN’s 10th anniversary, making the 2024 summit particularly significant. The event will bring together iCAN chapters worldwide for five days, focusing on paediatric research, healthcare innovation, collaboration, and advocacy. This year iCAN will...
TEDDY Working Groups
During the last GA, several 2023, several Working Groups (WGs) and subgroups have been created to plan, organise, and coordinate the activities that fall within TEDDY Objectives. Each TEDDY participant has selected one or more groups to which they are willing to...
TEDDY’s 2023 Annual General Assembly: Key Achievements
TEDDY ended 2023 on a high note! On the 21st of December the TEDDY Network held a successful Annual General Assembly meeting in hybrid mode. TEDDY Network members and participants reflected on the strides the TEDDY Network has taken thus far in improving Paediatric...
TEDDY representative appointment to the ENCePP Steering Group
We are excited to announce that Annalisa Landi, a TEDDY representative and researcher at Fondazione Gianni Benzi Onlus has been appointed as Steering Group member of the European Network of Centres for Pharmacoepidemiology and Pharmacovigilance (ENCePP) for the...