This patient-led rare disease policy official event of the 2022 French Presidency of the Council of the European Union will take place fully online from 27 June to 1 July, 2022 and will span over 5 half days.
This will provide the opportunity to expand outreach to key stakeholders, showcase strong political support, and build momentum for post-ECRD 2022 implementation.
The 11th ECRD takes place after a pivotal two-year Rare 2030 Foresight Study, supported by the European Parliament and European Commission, that guided a large-scale and multi-stakeholder reflection on rare disease policy in Europe through 2030.
The new policy framework for Rare Diseases in Europe has set three ambitious goals:
- Ensuring healthy lives and promoting well-being for all people living with a Rare Disease at all ages
- Reducing inequalities for people living with a Rare Disease
- Building resilient infrastructure, promoting inclusive and sustainable industry and fostering innovation for people living with a Rare Disease
The ECRD 2022 will be the perfect occasion to discuss how to make these proposals a reality.
Deadline for poster abstract submission: 21 April, 2022.
Poster submission will automatically give access to a LOTTERY giving you a chance to WIN A FREE PASS to attend the conference. See all the information for poster submission here.