The European Joint Programme on Rare Diseases (EJPRD) is a Co-fund action aimed to create a comprehensive, sustainable system allowing virtuous circle between research, care and medical innovation. TEDDY Network participates as Partner in this project and all of its Members are considered as Third Parties. The EJPRD has the main objective to create a research and innovation pipeline “from bench to bedside” ensuring rapid translation of research results into clinical applications and uptake in healthcare for the benefit of patients.
EJP RD is always proactive to promote education and training activities in the field of Rare Diseases and periodically organises training initiatives
Currently, two interesting upcoming training courses for this fall are foreseen, and in particular:
– On 29th-30th October 2019 the second appointment of workshop series on biobanks and biological samples coordinated by Fondazione Telethon (Italy) will be organised and focused on “Organizing & Maximizing Rare Disease Biological Sample Data in Biobanks”. More information is available here.
– The “Quality assurance, variant interpretation and data management in the NGS diagnosis era” will take place in Leuven, Belgium, on 23rd – 25th October, registration is open until July, 31st. The training course will be in English; registrations are open and free of charge.
Finally, on September 16th, 2019, in occasion of the first General Assembly of EJP RD, the workshop “Rare disease perspectives in Central – Eastern Europe”, twinned to the General Assembly of EJP RD, will be organized in Gdansk, Poland. The deadline for registration is September 1st, 2019.
For more information about the Programme and its initiatives, please visit the official EJPRD website.