Education is an essential component of social development and has an determinant impact on health, particularly, in the case of children. During the year 2020, thousands of schools and universities transitioned to a fully online learning setting. This situation has...
Depression and anxiety are common in children and indicate a problem with mood or anxiety processing. Depression and anxiety disorders can develop in children at any age, from preschool through adolescence. A combination of life experiences, inherited genes, and other...
We are very pleased to announce our collaboration with Cittadinanzattiva APS, through its branch, Active Citizenship Network (ACN). Cittadinanzattiva APS is an Italian civic organization, founded in 1978, which promotes citizens' activism for the protection of...
There are still many health conditions which only affect the paediatric population, this would be the case for 80% of rare diseases that lack approved therapeutic options. Clinical trials are essential for the development of new medicines. In the last years, in Europe...
The Spanish Data Protection Authority published, on last February, the "Code of Conduct on the processing of personal data in the field of clinical trials and other clinical research as well as pharmacovigilance" (CoC). The CoC regulates how data protection rules...
The European post-authorisation study (EU PAS) register is a repository launched in 2010 by the European Medicines Agency. Multi-database studies (MDS) leveraging secondary data have become an important strategy to conduct post-authorization studies (PAS) in recent...
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As part of the training activities proposed by EJP RD, an online training course on “Training on strategies to foster solutions of undiagnosed rare disease cases” is being organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP RD partners....
The Therapies Scientific Committee (TSC) of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force to characterize specific commonalities amongst a large group of “disregarded” rare diseases, with the potential secondary aims to...
IRDiRC's Therapies Scientific Committee (TSC) is establishing a Task Force on Drug Repurposing Guidebook aimed at helping developers identify specific tools and practices of relevance for repurposing projects, by focusing on repurposing approaches, following the same...