Exciting news from Kosovo! Last week, we spent two incredible days in Pristina, diving into the future of clinical trials in Europe's newest country. Led by Donato Bonifazi, member of the Board of Directors of TEDDY and CEO of CVBF, we had the privilege of visiting...
Council of Europe “Guide to children’s participation in decisions about their health”
We are proud to announce that the Council of Europe has released the Guide to children’s participation in decisions about their health. The Guide was prepared by a group of government and independent experts, who included Dr Annagrazia Altavilla, past chair of TEDDY...
iCAN 2024 Research and Advocacy Summit
This year marks iCAN’s 10th anniversary, making the 2024 summit particularly significant. The event will bring together iCAN chapters worldwide for five days, focusing on paediatric research, healthcare innovation, collaboration, and advocacy. This year iCAN will...
TEDDY Working Groups
During the last GA, several 2023, several Working Groups (WGs) and subgroups have been created to plan, organise, and coordinate the activities that fall within TEDDY Objectives. Each TEDDY participant has selected one or more groups to which they are willing to...
TEDDY’s 2023 Annual General Assembly: Key Achievements
TEDDY ended 2023 on a high note! On the 21st of December the TEDDY Network held a successful Annual General Assembly meeting in hybrid mode. TEDDY Network members and participants reflected on the strides the TEDDY Network has taken thus far in improving Paediatric...
TEDDY representative appointment to the ENCePP Steering Group
We are excited to announce that Annalisa Landi, a TEDDY representative and researcher at Fondazione Gianni Benzi Onlus has been appointed as Steering Group member of the European Network of Centres for Pharmacoepidemiology and Pharmacovigilance (ENCePP) for the...
TEDDY Kids at the 2023 iCAN Summit
TEDDY Network’s young persons advisory groups (YPAG) from Albania (KIDS Albania) and Italy (KIDS Bari) have participated at the 2023 International Children’s Advisory Network (iCAN) Summit that was held in La Jolla, San Diego, California from July 10 to July 14, 2023....
Third Paediatric Expert Patients Training Workshop
TEDDY is organising the “Third Paediatric Expert Patients Training Workshop” in collaboration with EURORDIS and the Sant Joan de Déu Research Foundation in the framework of the European Joint Programme on Rare Diseases (EJPRD). This year, the paediatric training...
Training for patient representatives and advocates on leadership and communication skills
This International Course organized by the Medical University of Gdańsk, in collaboration with EURORDIS and EJP RD, and the support of ACCURARE Turkey and ISS Italy, will be held in Gdańsk, Poland on 26 to 27 October 2023. The course aims to teach participants the...
TEDDY Kids meeting dedicated to Rare Diseases
This 28 February is Rare Disease Day (RDD), an opportunity to celebrate people living with rare diseases and to raise awareness of these disorders. TEDDY Network, through its Young Persons Advisory Groups (YPAGs) (KIDS Albania, KIDS Bari, and KIDS Hellas) and...