On May 2nd and 3rd, the ERDERA Young Patients Training was held in Athens at the Hotel Stratos Vassilikos, Olympia Room, organized by the TEDDY Network in collaboration with Rare Diseases Greece and with the support of KRIKOS ZOIS. In the framework of the...
ERDERA Seeks Rare Diseases Experts from Underrepresented Countries
ERDERA is expanding its expert network and is currently seeking specialists in Rare Diseases from underrepresented countries (UCs) to join its exclusive pool of experts. This initiative aims to enhance geographical representation and foster inclusive international...
Pediatric Interest in EMA-Qualified Novel Methodologies for Medicine Development
Innovative methodologies—such as in vitro and preclinical models, biomarkers, and pharmacometric approaches—play a crucial role in advancing medicine development, especially in areas where traditional clinical trials are limited by small populations, ethical...
Kick-off Meeting of the Patient Expert Committee of the European project OrphaDev4Kids – University of Bologna, 15 March 2025
On 15 March 2025, the kick-off meeting of the Patient Expert Committee (PEC) of the European project OrphaDev4kids was held in the Poeti Hall of the Hercolani Palace at the University of Bologna. The event was organized in a hybrid format, allowing active...
ERDERA Young Patients Training
GENERAL INFORMATION Are you an adolescent between 12 and 18 years old with an interest in healthcare, biomedical research, children's rights, and innovative methodologies in clinical research? Are you a patient living with Rare Diseases? Are you willing to acquire...
TEDDY Network Confirmed in Enpr-EMA Coordinating Group for 2025–2027
We are pleased to announce that our Board of Director member Donato Bonifazi has been confirmed as a member of the Enpr-EMA Coordinating Group (CG) for the 2025–2027 term. This recognition reinforces our commitment to advancing paediatric research and collaborating...
Descriptive Analysis of Pediatric Studies Included in the European Union Post-Authorization Study Register from 2010 to 2023 – Article pubblication
We are pleased to announce that the article titled "Descriptive Analysis of Pediatric Studies Included in the European Union Post-Authorization Study Register from 2010 to 2023", authored by our dedicated researchers, is now available online. This publication...
The OrphaDev4Kids project (OD4K)
OrphaDev4Kids (OD4K) aims to address the issue of insufficient Orphan Medical devices, especially in fields of prominent unmet needs (e.g., cardiology), for use in the paediatric population. In this project TEDDY aims to implement a complex innovation ecosystem in...
Accelerating Clinical Trials (ACT) in the EU workshops
ACT-EU (Accelerating Clinical Trials in the EU) is a Multi-stakeholders Platform Advisory Group, in which our network is contributing to with the definition of the ten Priority Actions (PAs) to drive the transformation of Clinical Research in Europe. The TEDDY...
The European Rare Diseases Research Alliance (ERDERA)
In ERDERA, TEDDY is tasked with the organization of a yearly training program, implemented during a 2–3 day training course, involving 20 young patients (12-18) with rare diseases. This training will be hosted each year for the whole duration of ERDERA, starting from...