The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the publication of a commentary on 10 years of progress and challenges of IRDiRC in the prestigious journal Nature Reviews Drug Discovery. The article summarizes IRDiRC’s vision and...
The webinar ‘ADDRESSING THE CHALLENGES OF CONCOMITANT DEPLOYMENT OF COVID-19 AND INFLUENZA VACCINATION’ is organised by Active Citizenship Network(ACN) and will be held on 17th December 2021 at 11.00 CET. TEDDY Network will be represented by Prof. Carlo Giaquinto who...
EPTRI is organizing the second webinar on medical devices: ‘Health technology designed for children with children’ that will be held on 16 December 2021 at 15.00 CET. Register here. Versatility is key to the development of health technology for children and young...
Fondazione Gianni Benzi organises the XIV Foresight Training Course “The health emergency: regulatory crash and future perspectives” that will be held virtually on December 10th, 2021 at 11.20 (CET). Register for free to the event here! Experts in the field will...
The European Medicines Agency is carrying out a survey to gather information on your current experience with the Orphan Maintenance Assessment Reports (OMARs) / Orphan Designation Withdrawal Assessment Reports resulting from the review by the Committee for Orphan...
The article summarises aspects of clinical research in paediatrics stimulated and reinforced by COVID-19 that the conect4children group recommends regulators, sponsors, and investigators retain for the future, to enhance the efficiency, reduce the cost and burden of...
The BMJ Journals published the article ‘Should children be vaccinated against COVID-19?’ which addresses the ongoing debate on the vaccination of children under 12 years of age against COVID-19. The relatively low risk posed by acute COVID-19 in children, and...
The first paediatric expert patients training workshop, organised by TEDDY Network in collaboration with EURORDIS and the Sant Joan de Déu Research Foundation in the framework of the European Joint Programme on Rare Diseases (EJPRD) was kicked off on 26 November 2021....
The 1st International Conference on Rare Diseases and Paediatric Research took place virtually on 18-19 November 2021. Organised by 95, Rare Alliance Greece together with Consorzio per Valutazioni Biologiche e Farmacologiche (CVBF) and “Athena” Research Center in...
The CP4EUROPE (Strengthening National Child Participation Frameworks and Action in Europe) is a project funded by the European Commission under the DG JUST – Rights, Equality and Citizenship (REC) Programme. It was kicked-off on 1 April 2021 and will last 24 months...