On 30 November 2020, the European Medicines Agency will organise a workshop on support for orphan medicines development with the aim to encourage early and efficient interactions with the regulators by highlighting pre-marketing support in medicine development in rare...

On November 30 until December 6, 2020, the Duchenne Data Foundation has organised its third Edition of the “Duchenne Patient Academy”. The Duchenne Patient Academy has the aim to create a wider understanding of Duchenne Muscular Dystrophy (DMD) and coordinate the...

  The Harvard Medical School is releasing a series of educational videos covering the COVID-19 pandemic. This initiative started on April 2020 and was designed especially for physicians, nurses and other health care providers. COVID-19 continues to change many...

An early announcement of the joint transnational call 2021 has been published on EJP RD website. In order to improve healthcare system and ordinary life of people that live with rare diseases, this call has the aim to encourage research on Social Sciences and...

The European Joint Programme on Rare Diseases (EJP RD) has developed, together with a working group led by EURORDIS, named Patient Engagement in Biomedical Research Projects (PENREP), a short guide on Patient Partnership in rare disease research projects. The main...

The Clinical Trials Europe is the Europe's largest event dedicated to streamlining clinical trials and improving patient outcomes. The 2020 Edition will take place virtually on 2-4 November due to covid-19 pandemic. The agenda will foresee 6 conference streams and 2...

The Committee for Orphan Medicinal Product (COMP) of the European Medicines Agency (EMA) will organise a Workshop on support for orphan medicines development on 30 November 2020. The virtual event aims to encourage early and efficient interactions with the regulators...

The XIII Foresight Training Course (FTC) will be held virtually on 23 October 2020. Annually, Fondazione Gianni Benzi organises the Foresight Training Course (FTC), a short international course aimed to promote pharmacological research and innovation. This year, due...

EPTRI the new establishing European Research Infrastructure entirely dedicated to paediatric research and coordinated by Consorzio per Valutazioni Biologiche e Farmacologiche (CVBF), has successfully submitted the application to be included in the ESFRI Roadmap 2021,...