On May 2nd and 3rd, the ERDERA Young Patients Training was held in Athens at the Hotel Stratos Vassilikos, Olympia Room, organized by the TEDDY Network in collaboration with Rare Diseases Greece and with the support of KRIKOS ZOIS. In the framework of the...
ERDERA Seeks Rare Diseases Experts from Underrepresented Countries
ERDERA is expanding its expert network and is currently seeking specialists in Rare Diseases from underrepresented countries (UCs) to join its exclusive pool of experts. This initiative aims to enhance geographical representation and foster inclusive international...
Pediatric Interest in EMA-Qualified Novel Methodologies for Medicine Development
Innovative methodologies—such as in vitro and preclinical models, biomarkers, and pharmacometric approaches—play a crucial role in advancing medicine development, especially in areas where traditional clinical trials are limited by small populations, ethical...
Kick-off Meeting of the Patient Expert Committee of the European project OrphaDev4Kids – University of Bologna, 15 March 2025
On 15 March 2025, the kick-off meeting of the Patient Expert Committee (PEC) of the European project OrphaDev4kids was held in the Poeti Hall of the Hercolani Palace at the University of Bologna. The event was organized in a hybrid format, allowing active...
ERDERA Young Patients Training
GENERAL INFORMATION Are you an adolescent between 12 and 18 years old with an interest in healthcare, biomedical research, children's rights, and innovative methodologies in clinical research? Are you a patient living with Rare Diseases? Are you willing to acquire...