The BLACKSWAN Foundation and IRDiRC, the International Rare Diseases Research Consortium, will organise the RE(ACT) Congress and IRDiRC Conference 2020 – Berlin, Germany 11-14 March.
This joint event will continue the RE(ACT) Congress series (6th edition) and IRDiRC Conference series (4th edition). It aims to bring together scientific leaders and experts and young scientists from a variety of breakthrough scientific fields to present cutting-edge research, exchange ideas, and discuss policies related to rare diseases research. Patients and patient organizations, who are committed to research, will also be in attendance to share their experiences and perspectives.
This year the joint edition of the 6th edition of the RE(ACT) Congress and the 4th IRDiRC Conference will be organized in collaboration with the European Joint Program Rare Diseases (EJP RD) and in partnership with Eurordis (European alliance of patient organizations) and RDI – Rare Diseases International (global alliance of people living with a rare disease). EJP RD is a Co-fund action aimed to create a comprehensive, sustainable system allowing virtuous circle between research, care and medical innovation. TEDDY Network is among the beneficiaries of this project that has as objective to create a research and innovation pipeline “from bench to bedside” ensuring rapid translation of research results into clinical applications and uptake in healthcare for the benefit of patients.
The RE(ACT) Congress – International Congress of Research on Rare and Orphan Diseases – was initiated in 2012 by the BLACKSWAN Foundation to create a forum for and promote scientific cooperation and research on rare and orphan diseases. IRDiRC – launched in April 2011 at the initiative of the European Commission and the US National Institutes of Health – fosters international collaboration on rare disease research by bringing together researchers, funders and patient advocacy organizations that work collaboratively within a multinational consortium.