c4c (conect4children) is a large collaborative European network that aims to facilitate the development of new drugs and other therapies for the entire paediatric population. In this sense, the voices of children, young people and their families are a pivotal part of the innovative approach of c4c project. It places patients at the centre and will assign them an active role in the development of the different clinical trials that are going to be conducted during this project. For this reason, and in order to guarantee patients’ involvement in all the activities of the project, c4c has setup a database to gather information on patients, caregivers, patients organizations and/or YPAGs (Young Person’s AdvisoryGroup) of rare/paediatric diseases (specially Kawasaki disease, Cystic Fibrosis, Osteogenesis Imperfecta and Patient Ductus arteriosus in neonates).
If you wish (or know someone who could wish) to be part of the c4c pool of expert patients, you can find out more by following the instructions here!